Bruce Willis’ wife Emma Heming talks ‘caregiver burnout’ amid husband’s dementia battle

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Bruce Willis’ wife Emma Heming shared a powerful conversation with Gertrude Jordan, a dementia coach, who advised her on caring for a loved one with memory loss.

While chatting over video chat on Tuesday, the 44-year-old model, who announced that her spouse suffers from frontotemporal dementia in February, sought advice on how to navigate the ‘heavy load’ of caregiver. 

After reflecting on struggling to ask others for help, the mother-of-two said she is learning ‘people actually do want to help’ but doesn’t always know what tasks to give them.

Jordan suggested allowing members of her community to step in and occasionally ‘relieve’ her of tasks, such as driving to a doctor’s appointment or allowing someone else to sit with her partner for 30 minutes as she focuses on for self-care. 

She went on to empathize with Heming’s struggle of having relatives and friends being ‘nervous’ to come around and call. 

Speaking up: Bruce Willis' wife Emma Heming shared a powerful conversation with Gertrude Jordan, a dementia coach, who advised her on caring for a loved one with memory loss

Speaking up: Bruce Willis’ wife Emma Heming shared a powerful conversation with Gertrude Jordan, a dementia coach, who advised her on caring for a loved one with memory loss

Struggling: While chatting over video chat on Tuesday, the 44-year-old model, who announced that her spouse suffers from frontotemporal dementia in February, sought advice on how to navigate the 'heavy load' of caregiver

Struggling: While chatting over video chat on Tuesday, the 44-year-old model, who announced that her spouse suffers from frontotemporal dementia in February, sought advice on how to navigate the ‘heavy load’ of caregiver

‘There not use to seeing the person they knew in a different state… that can be a little tricky,’ Heming said of her situation at home.

To keep a positive mindset, Heming saya she tries to start her day with gratitude and focuses on the things she would like to accomplish and make time for in the morning. 

Before bed, the star works on ‘flipping the script’ and never dwelling in the ‘doom and gloom.’

When asked directly how she was doing, Emma answered: ‘Today? Good. After speaking with you, good. You know, I have my moments.’

‘ It just depends. I’m hanging in there and doing the best that I can. And, turning my pain into purpose,’ she continued. 

In March, Heming shut down claims she was using her husband’s devastating dementia diagnosis for her own ‘five minutes’ of fame.

Heming, who has been married to Willis, 68, since 2009, has made it her mission to help raise awareness of aphasia after it emerged in March 2022 her spouse was battling the condition.

Willis, who was forced to retire from his acting career, has since been diagnosed with Frontotemporal Dementia.

New chapter: After reflecting on struggling to ask others for help, the mother-of-two said she is learning 'people actually do want to help' but doesn't always know what tasks to give them

New chapter: After reflecting on struggling to ask others for help, the mother-of-two said she is learning ‘people actually do want to help’ but doesn’t always know what tasks to give them

Heming, who has two young children with Willis, promised she would use the momentum her position has given her to ‘raise awareness’ about her husband’s illness, and glorify ‘caregivers, who are unsung heroes out there.’

She continued: ‘And then I’m going to turn my grief and my anger and my sadness into something good around something that feels less than.’

‘Watch this space because I didn’t come to play.’

Willis’ adult daughter Scout commented in a post under the video: ‘HELL YES! I am so so proud of you!’

Another user wrote: ‘Good for you! I must confess that my previous perception of you – created solely by the paparazzi – was not exactly a woman of substance. So sorry for what you and your family are going through. You truly are a woman of substance and power. I will be listening and learning.’

The Willis family revealed in February that his condition had deteriorated, and said that while the reality is ‘painful, it is a relief to finally have a clear diagnosis.’

Blended family: Willis shares Rumer, 34, Scout, 31 and Tallulah, 29, with Moore, 60 to whom he was married from 1987 to 2000. He also has two daughters, Mabel, 10, and Evelyn, 8, with his wife Emma, 44, of 14 years

Blended family: Willis shares Rumer, 34, Scout, 31 and Tallulah, 29, with Moore, 60 to whom he was married from 1987 to 2000. He also has two daughters, Mabel, 10, and Evelyn, 8, with his wife Emma, 44, of 14 years 

‘FTD is a cruel disease that many of us have never heard of and can strike anyone. For people under 60, FTD is the most common form of dementia, and because getting the diagnosis can take years, FTD is likely much more prevalent than we know,’ they added.

The statement, which was signed by Heming, Bruce’s five daughters (including Mabel 10, and Evelyn, 8), and his ex-wife Demi Moore, added that if the action star ‘could’ respond to his situation, he would want to help spread awareness and bring ‘global attention and connectedness’ to others dealing with the ‘debilitating disease.’

Willis shares Rumer, 34, Scout, 31 and Tallulah, 29, with Moore, 60 to whom he was married from 1987 to 2000. He also has two daughters, Mabel, 10, and Evelyn, 8, with his wife Emma, 44, of 14 years.

Aphasia, which the actor was first diagnosed with last year, can affect a person’s ability to speak, write and understand verbal and written language.

Willis’ diagnosis of frontotemporal dementia can include symptoms such as personality changes, speech difficulty and motor impairment.

At the time, Heming said she was grappling with ‘paralyzing’ grief, saying she was ‘learning how to live along side it.’



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